Category Archives: Illness

Showers, Miracles, and Faith

     imagesIt was a gray day with intermittent light and heavy showers.  We needed the rain and I found myself humming, perhaps about the rain, perhaps about the call.

 

 

There shall be showers of blessings
This is the promise of Love.
There shall be seasons refreshing
Sent from the Savior above.

Showers of blessings.
Showers of blessings we need.
Mercy drops round us are falling,
But for the showers we plead.

     I was again waiting for a call. My now eleven-year old great niece was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), a rare and devastating brain tumor, almost three months ago. She tolerated the six-weeks of focused radiation treatments very well and with occasional medication has been fairly symptom free. The doctors say she is doing better than any child they have ever treated with DIPG. We are thankful!

     Last Friday she had an MRI to see if the radiation had had any effects on the tumor and as a prerequisite to possible participation in an immunotherapy clinical trial at Texas Children’s Hospital in Houston. From the initial diagnosis we have been keenly aware of the devastating statistical prognosis for DIPG patients. While there has been no denying the science of the disease, we have steadfastly prayed along with possibly thousands of others in our social media and home communities for God’s grace and healing for our girl. Family, friends, community members, total strangers have reached out with love, concern, compassion, and generosity. From the Make-A-Wish Foundation who sponsored a trip so that our girl could get her wish to “swim with the dolphins” to the local community sponsoring an event to raise funds for medical expenses and contributions to DIPG research there has been an outpouring of support that has confirmed our belief in God’s work of grace and goodness through good people. We’ve prayed for a miracle of healing while we’ve experienced the miracle of God’s love and grace everyday since the diagnosis.

     The call came from my sister. “Are you ready for this?” she asked.
     “Yes, what does it show?”
     With a trembling voice she replied, “They can’t see it. It is not there!”
     “What! It’s gone! We prayed for a miracle. Praise the Lord!”  She was waiting to hear more from my niece so we quickly hung up amid tears of joy.

     These last months as I have prayed for healing, grace, wisdom, comfort, and strength for our girl and her family, I have been continually reminded of and prayed John 11:4, a verse I claimed for myself during some difficult days many years ago.

This illness does not lead to death. It is for the glory of God so that the Son of God may be glorified through it.

     Yes, to God be the glory! While trying to soak in the reality of our answered prayer and this miracle, I found myself somewhat incredulous. Before the diagnosis I had prayed for the best even as I prepared for the worst, which is exactly what we got. Perhaps this time we have repeated that scenario, but with a different, positive result. Now that our prayer for the tumor to be gone is the reality, why does it seem incredible?  Is it some flaw in our faith? Do we lack the capacity to fully believe in God’s power and grace? Are we so steeped in the modern science of medicine that we dismiss the Great Physician? Is incredulity inherent in miracles? I am reminded of the words of the tearful father with the epileptic son in Mark 9:24.  Lord, I believe; Help my unbelief!

     I have read the MRI report stating, “There are no focal areas of abnormal signal, restricted diffusion, or abnormal enhancement within the brain. No mass, hemorrhage or acute infarct is present.” I have seen the before and after MRI images confirming no presence of a tumor. The doctors in Austin, Houston, and Boston have described the report findings as “rare, very rare.” One stated she has never seen this type of results following radiation treatment for  DIPG. Doctors have conferred and are confident they did not misdiagnose. The consensus is that the original diagnosis of DIPG was correct, and there is no disputing that the once large, entangled, inoperable tumor is now gone. Lord, I do believe; help my unbelief.

41688221_158409825077614_2163469215628001280_n

The images on the left are pre-radiation. Those on the right are post-radiation.

     This is not the end of our girl’s medical treatment. As scientists, the doctors are encouraging continued immunotherapy treatments in clinical trials to combat any possible remaining cancer cells. Only time and periodic MRI’s will tell if the tumor returns. Regardless of what the future may hold, in the here and now, we, and thousands of others, are celebrating and giving God the glory for this miracle of grace and healing.

     As the showers continued outside, my heart was flooding with song:

There shall be showers of blessings
This is the promise of Love.
There shall be seasons refreshing
Sent from the Savior above.

     Thank you, God, for your showers of blessings—your miracle of healing, the miraculous medical interventions and technologies that you have allowed man to develop, your grace that sustains our faith, your faithfulness even as our faith falters with doubts, the love and support of friends, family, and total strangers—your kingdom here and now on earth. Thank you for the faith of a child who told her parents as they were driving home from the doctor visit: “You all just didn’t have enough faith. I knew it would be gone.”

     We continue with prayers of thanksgiving and for sustained healing and good health for our girl.

 

 

 

 

 

When Nothing (Else) Seems to Matter!

I had projects waiting to be completed, letters to write, and activities to plan. I was eager to get started or get back at them. Today, I don’t seem to care. They are trivial and seemingly unimportant. What has changed?

I got the call a week ago on Thursday evening. I had waited for it all day. After nearly two weeks of symptoms—headache, vomiting, and general fatigue and feel bad—numerous doctor’s appointments, and countless medical tests, we were waiting to hear the results from the MRI. The ENT doctor had discovered the nystagmus, uncontrolled eye movements, Tuesday afternoon and immediately set up an appointment with the pediatric neurologist for Wednesday afternoon. The neurologist saying, “Let’s not wait until tomorrow,” scheduled the MRI for 9:30 that night. Prayer mode kicked into higher gear!

After learning of the nystagmus, I did some googling—not necessarily a good thing to do. While praying for the best outcome, an old “what if,” worst-case scenario habit, kept haunting me. She, my ten-year-od great niece, was exhibiting five of the six symptoms of a brain tumor! The call came. “It’s a brain tumor.” Okay, I was somewhat prepared for that. What came next had never entered my mind. “It is inoperable, on the brain stem and too large and entangled with other tissue. They will do some radiation to hopefully shrink and stop the tumors growth.” The projected prognosis is the worst imaginable. The emotions came quick and hard even while I said my goodbyes, “We are praying. Keep in touch. I love you,” and clicked off the phone.

I fell into the sofa crying. I wailed, “Oh, God, no!” I cried more. My wife held me. We held each other. We cried. My chest hurts, I can’t get my breath. Am I having a heart attack? The sobs and pain lessened momentarily only to come roaring back again and again. It felt like a vise was tightening around my chest. Just breathe. Just breathe! Is this what a broken heart feels like?  My heart breaks for my sweet little niece and her family—her mama, daddy, big brother and big sister. My heart breaks for her grandmother, my sister. I am heartbroken.

In the week since the call, I am not crying as much, but there are still times that I feel myself “going down” and tears welling up. I have asked “Why, God!” No answers other than we live in a fallen imperfect world in flesh and bone imperfect bodies. Don’t know if that is God’s answer or mine. I haven’t been able to focus on much other than staying in touch with the family, keeping others posted on what is happening, joining the wonderful “tribe” of folks who have come together to support my niece and her family, and reaching out to friends asking their prayers. I have learned a lot—more than I would want to know–about Diffuse Intrinsic Pontine Glioma (DIPG), a rare and the most devastating pediatric brain tumor. I have researched numerous clinical trials. We are hopeful and thankful that she has seen the doctors at MD Anderson, St. Jude Children’s Research Hospital has called, and there seem to be some options for clinical trial participation. Outside physical labor has provided some respite and distraction. I have weeded and spread 60+ bags of mulch in various beds this week. Good sleep seems to only come with total exhaustion. I could retreat into total aloneness. I know that would not be a healthy choice for me so I try to balance alone time and being with friends that I care about and I know care for me. I continue to pray even as I have no words. I am reminded of James Montgomery’s hymn “Prayer is the Soul’s Sincere Desire.”

 Prayer is the soul’s sincere desire
     Uttered or unexpressed
The motion of a hidden fire
    That trembles in the breast
Prayer is the burden of a sigh,
   The falling of a tear;
The upward glancing of an eye
   When none but God is near.

Yet, every time I turn to other interest that I have been passionate about—social justice issues, civic organizations, ministry and advocacy work—they just don’t seem to be important or matter anymore. My head tells me they are important and maybe the passion will return in time, or maybe not.

In my heart right now, nothing else matters!

 

 

%d bloggers like this: