It’s morning on the bayou. The porch is cool and pleasant even though the temperature is already 79 degrees at 8 A.M. I suspect the “cool” is attributed to the fans. Fans on the bayou in late Spring serve two purposes – cooling and mosquito repellant!
There is, however, a bit of a breeze this morning. I hear it and see it as the leaves rustle, and the otherwise glassy bayou surface occasionally convulses and shutters. The bayou is up, filled with murky water from the recent rains and runoff, and flowing at a good clip. The spring rains came late and lasted longer this year – through May and into June. I spent several hours yesterday mowing. I have enjoyed mowing since I was a kid. For me, repeatedly making the square, focusing on the line between mown and not-mown grass is calming – almost sedating. I must say it is a bit easier now with the riding lawn tractor than it was back then with the simple, little 22-inch push mower. I see images of myself bent at the hip, focused, and determined to move the mower forward.
The receding water level has left areas, usually dust dry, soggy and squishy – ideal for getting stuck. I am extra cautious remembering last year when I got “too close,” and the lawn tractor slipped leaving me stranded on the muddy bayou bank. The 4Runner and a long, heavy chain saved the day.
When I first came out this morning the birds were in full flight and voice darting here and there to a cacophony of birdsong – tweets, warbles, chirps, screeches, and caws. Not so much now! Perhaps the wind has stilled their flight and voices – yielding to a higher power. Yielding to a higher power – that seems to be easier here on the bayou while immersed in silence, solitude, and the ordained simple, exhausting tasks of “chopping wood and carrying water,” which is according to Brother Lawrence in Practicing the Presence of God, finding God, the Holy, in the ordinary tasks of our days.
I am often drawn to the “monkish” life feeling immense contentment, peace, and joy in silence, solitude, and simple work while observing the awe and wonder of the beauty, complexity, simplicity, and horror of our natural world. I have sometimes felt the “monkish” life” to be a calling. Yet I question – calling or escape? I suppose there is a balance to be had.
Being here on the bayou, this “monkish” life, feels like a return to all that is true and real in life – me, the presence of God, work, and rest. Wow! Where did that come from? Though drawn to the silence and solitude, I know that even as an introvert I am a social being. I enjoy personal interaction with others just not a whole lot of folks at one time and not all the time.
In the natural setting of the bayou, it is not difficult to discern, feel, and commune with God – to practice His presence. But out there in the world, it is not as easy. I get caught up in the activity, the business, the people. In practicing the presence of God in the world I seek to experience a greater awareness of God’s presence in people, all people – created in His image – as I live, work, and rest with and among them.
That’s me, and perhaps humankind as well – a paradox, a jumble of contradictory qualities and traits. I suppose living with and within my contradictions while seeking a sustainable, functional balance that allows me to grow and mature into all I am and was created to be is the stuff of life and the spiritual journey. Whether on the bayou or in the world may I live in the realm of all that is true and real for me: me, the presence of God, work, and rest.
These words from Thomas Merton”s Conjectures of a Guilty Bystander, some of my reading on the porch, seem to be germane to my musings:
Solitude has its own special work: a deepening of awareness that the world needs. A struggle against alienation. True solitude is deeply aware of the world’s needs. It does not hold the world at arm’s length.—-Thomas Merton
I have read, memorized, and recited Matthew 6: 9 – 13, “The Lord’s Prayer” since I was a kid in Vacation Bible School and never questioned its content, context, or origins. I can still recite it, but no longer can I say that I do not have questions.
The questions started a couple of years ago, but until now I have only mulled over, sat on, and questioned my questioning. Since I can’t seem to stop chewing on the questions, I suppose it’s time to spit them out!
The first question surfaced around the phrase “. . . lead us not into temptation. . .” What? If we are asking God to NOT lead us into temptation, are we to logically conclude that God would indeed lead us into temptation? There is something unsettling about imagining a father, heavenly or otherwise, who would lead his children into temptation.
That leads to the second and third questions regarding the phrase “Our Father in heaven…” “Our Father. . .” – what about the feminine, our Mother God? Have we forgotten Genesis 11:27 and being told that God created them, male and female, “in his own image?” I interpret that as God being equally male and female. Remember Deuteronomy 32:18, “you forgot the God who gave you birth” – mothers give birth. What about Isaiah 66:13, “As a mother comforts her child, so will I comfort you.” It seems to me that God is as much feminine as masculine! We’ve missed Her way too long, and in my opinion, we have suffered for it.
Moving on! What’s with “in heaven”? God isn’t just out there somewhere way over yonder! God is right here among us. Whether I ascend to heaven, make my bed in Sheol, or paddle around in the uttermost parts of the sea, God is present (Psalm 139: 7-10). Christ admonishes the Pharisees to “Behold” — pay attention for this is important — and then informs them that the kingdom of God is in their midst (Luke 17: 21). I would assume then that God is in our midst for surely God inhabits her kingdom.
As I have chewed on these questions, my prayer to my Lord has evolved:
Father God, Mother God,
In the heavens and on earth among us,
Hallowed – holy, sacred, majestic – is your name.
May your kingdom in heaven and on earth be nurtured and flourish
As we seek to know and do your will.
Give us this day our daily bread,
As we give gratitude and praise for your provision and sustenance.
We ask forgiveness for our sins,
Things done and things not done,
Words spoken and words not spoken.
Through the grace of your forgiveness,
May we forgive those who have sinned against us
Guide us in your will and righteous ways.
Guard us from temptation.
Deliver us from evil.
For yours is the kingdom, and the power, and the glory forever. Amen.
Yes, I know there is a lot of stuff – opinion, interpretation, research – out there regarding “The Lord’s Prayer” and its content, context, and origins. All of which is probably interesting and thought provoking! I’ve read a good bit of it. However, for my purposes in this writing, it is irrelevant. Mine is not a scholarly discourse, I write simply expressing my knowing as I continue my journey as a pilgrim, seeker, heretic.
In these uncertain, sometimes surreal, times as we continue to navigate this uncharted coronavirus, so much in our lives is different. I strive to maintain some constancy and familiarity with my daily walks. Walking is one thing I can continue to do without violating any stay-at-home orders or wearing a face mask (I can’t seem to keep my glasses from fogging up!) all while accommodating the social distancing rule. So, I walk, and I walk some more!
I tune into Pandora on my phone and take off. Occasionally I dial in my Disco Station particularly if I feel the need for a brisker, aka workout, walk. Most of the time I opt for the quieter, soothing sounds of Relaxation Radio or Enya. Of late, my walking is more about seeing, reflecting, pondering, processing, and meditating. The exercise, albeit a good thing, is not the primary focus.
As I walk, I look up, around, and down practicing wakefulness in the moment, resting in the rhythms of connection to myself and my surroundings. I see the squirrel perched precariously at the tip-end of a tiny limb. How does it not break! I see and hear the dogs barking and jumping at the fence as I pass. I don’t think, I hope, they can’t jump over it! I see the steadfast sky, serene and majestic in its brilliant blue or ominous and quarrelsome dripping gray. The stalwart lilies and irises turn their vivid, multicolored faces to the sun. I see the sap rising in the trees oozing out in variegated green leaves of all shapes and sizes – a gorgeous contract against the blue sky. I feel the warm, spring sun tempered by a slight, cool breeze. I delight in seeing the youngsters on their bicycles and scooters.
I reflect. It is all so good, so joyous! I ponder the contrast between the vibrance and beauty around me and the devasting reality currently engulfing our world – sickness, death, hunger, uncertainty. Added to this is the personal grief and loss with the recent death of my twelve-year old great-niece. The angst is palpable! I walk. I process. I embrace the both/and of my realities. I walk meditating. Borrowing from our Buddist friends, I lean into the sharp point, feeling the pain and losses for myself, my family, and the world. Yes, at times the tears do come. I breathe exhaling the pain. I breathe in the serenity, comfort, and peace that surrounds me. I keep walking.
This morning as I walked, I thought about Jesus and how much he and his disciples walked. I imagined their sandeled feet steadily walking the dusty roads, cobbled streets, and lush gardens. I wonder what their walks were like. I kept walking!
I found myself feeling a bit out-of-sorts, disgruntled, unsettled this morning. Maybe it’s cabin fever after eleven days at home trying to do my part to “flatten the curve” on this COVID-19. Perhaps it’s the general uncertainty and angst surrounding this public health crisis, or it could be my incredulity regarding the remarks made yesterday by one of our state leaders. My plans were to clean out the pantry closet. Nah! It’s a pretty day outside, so I opted for yard work. Nope! The wind is blowing the pollen around like crazy – an allergy/sinus event just waiting to happen – and the ground is very wet. I wanted to work in the yard not play in the mud and get sick. So back inside. Maybe I just need to be still and quiet!
I did just that, closed my door and settled into my comfy reading chair. After some quite, focused breathing, and meditation I picked up A Year with Thomas Merton. Turning to my marked spot, I read:
“Silence, then, is the adoration of His truth, Work is the expression of our humility, and suffering is born of the love that seeks one thing alone: that God’s will be done.”
This was in the chapter entitled “Truth is Formed in Silence, Work, and Suffering” written in Merton’s journal on November 12, 1952. I suppose I needed that reminder in these uncertain times. Now on to my humble work. The sun has come out so perhaps the ground is dryer and more amenable to the spade.
I recently started participating in a book study. It is a diverse group of good folks –christian, atheist, agnostic, whatever — each on a journey of personal spiritual growth. Like me, they seem to be pilgrims, seekers, and heretics – awash in questions and doubts, deconstructing former concepts and beliefs, constructing personal truths and unique spiritual paths, — staying the course with authenticity and integrity in our often chaotic intersections with the world we live in, the life inhabiting that world, and the Spirit/God embodied in both the world and its inhabitants.
We are studying Rob Bell’s What We Talk About When We Talk About God. Much of our first discussion centered around Jane Fonda’s remarks made during a 2007 interview with Rolling Stonemagazine, “I could feel reverence humming in me.” Do you have a sense of “reverence humming” and “What is it?” My response to that question was to share a bit of my winter hike expereince. Hiking along an ice and snow laden trail I was bent, literally and figuratively, on keeping my eyes on the trail, following exactly in my hiking buddy’s footprints, and cautiously testing every step for firmness. I finally had to stop and straighten my aching, bent back.
As I looked up, my breath caught. The towering, red-rock canyon walls glistened in the bright, cold afternoon sun. They jutted straight up into a flawless, cobalt blue sky. “Wow, look at that!” was all I could utter. As I stood there taking it all in, I was overwhelmed with feelings of wonder, awe, gratitude, humility, and reverence. My heart was full and overflowed as tears filled my eyes. That, for me, was “reverence humming in me.” It was an experience I will never forget, and one which I frequently recall on hiking trails and elsewhere as I remind myself to “look up.”
Since that experience 28 years ago, I have (I think, I hope, but maybe not?) become more open, receptive, and settled to and into the various sounds, rhythms and vibrations of “the hum.” Never used the word “humming” to describe it, but I like Ms. Fonda’s analogy. “Hum” seems to give some substance to an otherwise intangible, indescribable feeling.
Where does the “humming” come from? For me, at this point in my journey, it comes from a sense of awareness, connection, and gratitude. A keen awareness of the mystery, the miracle, the love, the grace, the wisdom and truth of the of Spirit of God present in our world. A profound sense that I am connected to it all — a part of it, a product of it, a participant in it. And grateful for it all!
Here’s and idea! Let’s all “hum” in concert!!
I don’t know if it classifies as binge watching, but I watched all ten episodes of Netflix’s new series, “Messiah,” in four days. Pretty much a record for me! I have been mulling over various aspects of the program since then (over a week) and can’t seem to clear my mind of it so I just need to say what I think.
I have read several reviews of the program and most of them pan the series citing numerous flaws from ambiguity,poor story lines and character development, to “no deep theological grounding or specificity.” Some of these I agree with and some I do not even while acknowledging that I am by no means schooled as a cinema critic or theologian. I do believe that the program made some salient points regarding the coming of the Messiah – both first and/or second – and our receptivity – historical and/or future – of the Messiah.
The overbearing question throughout the series seems to be, “Who is he? Is the stranger, dubbed Al-Masih (the Messiah) by his followers, the Messiah, Jesus Christ, returned?” “Who is he,” is a centuries old question beginning when Jesus asked Peter, “But who do you say I am?” (Matthew 16:15; Mark 8:29; Luke 16:15). Folks through the ages have answered that question in a variety of ways and will continue to do so. With regard to Netflix’s “Messiah,” I believe perhaps we are asking the wrong question. Maybe the more relative question is, “Who are we; who am I?” Can we see ourselves in the characters portrayed in “Messiah?”
Are we the prostitute, paid by a high-level government official to seduce Al-Masih as a means to discredit him, who upon experiencing his gentle confrontation of her life, “How can you be the person God intended if you are not honest about who you are?” and hearing, even in the wake of her deception, the truth of God’s love for her walks away repentant and changed. Are we the agent who deceptively witnesses this encounter and walks away changed – to the point of quitting his job. Are we, am I, like these two — truly changed when touched by the love of God?
Are we Jabril, the young Al-Masih follower who stays true to his belief in Al-Masih even as Al-Masih has seemingly abandoned them in the desert at the Israeli border? Through injury, thirst, and hunger Jabril is sustained by his belief and the dreamy appearances of his deceased mother who had told him, “God has a different plan for you.” It is Jabril who courageously leads the remnant of followers into Israel, and some critics speculate that he is the real Messiah. Did Jabril’s touch revive the apparently deceased Qamar? Or, perhaps Jabril is not the Messiah but simply a true disciple and as Jesus said, “I tell you the truth, anyone who believes in me will do the same works I have done, and even greater works…” (John 14:12 New Living Translation). In all our claims to be Christian, are we, am I, like Jabril, a true follower of Christ?
Are we Pastor Felix Iguera who was disillusioned with church and ministry to the point of dousing his church with gasoline before it was miraculously saved from a tornado? Iguera experiences a roller coaster of despair, confusion, doubt, and hope only to succumb to his own weaknesses and family frailties. Claiming to be a humble servant and wanting only what God wants, he takes the reins and arranges for AL-Masih to appear on his millionaire, televangelist father-in-law’s show claiming “this is what God wants” Al-Masih agrees, but when he walks away from the appearance Iguera is again in confusion and despair.
When the story breaks that Al-Masih, by his own admission and hard evidence, is a mortal man, Iguera returns to his church and in what seems to be an act of lost faith he does indeed burn it down. This brings me to a question of our faith. If the true Messiah, Jesus, is not the literal Son of God, does that negate his message to the world? Does that mean Jesus was not God’s anointed? Is our belief in Jesus as God’s Word to the world based solely on our belief that he is the literal Son of God? Are we, am I, Pastor Iguera?
Are we Aviram, a hard-nosed, tormented, vengeful, often brutal Israeli agent, who is intent on catching Al-Masih and exposing him as a fraud? Aviram is unwavering in his purpose even as he is shaken by Al-Masih’s knowledge of his past bad acts. He flirts with belief yet remains hard-hearted. Not until he is facing imminent death and tormented by his sin, his “failure to choose goodness,” does Aviram say, “I’m sorry,” as the plane crashes. Are we Aviram — tormented with shame, hardened, and unable to accept God’s love?
Are we Eva Geller, the CIA agent, sparing with Aviram, and equally determined to debunk Al-Masih and uncover his real intent? Eva has issues. Her identity is in her work. She has a strained relationship with her father, grief and guilt over her late husband, is distraught over not being able to have children, and is sensitive about her mother and her Jewish heritage. In her own words to Aviram, “I am as messed up as you.” She too is shaken by Al-Masih’s knowledge of her past which further solidifies her efforts to find “the truth.” Even as she finds evidence of “the truth” of Al-Masih’s identity and suspects that the U. S. government shot down the plane carrying him back to Israel, she appears to continue to run from the truths of her personal life and emotional distress – she remains a lost soul. Are we Eva?
Yes, “Messiah” has spawned questions and controversy among viewers and critics. Of course, Christ, the Messiah, has stirred questions and controversy for centuries. Ultimately the question “Who is He?” is only answered by each of us individually in our own unique way based on our beliefs. In regard to the question, “Who are you/Who am I?” I am drawn to Al-Masih’s words, “How can you be the person God intended if you are not honest about who you are?” Honestly, answering that question is not easy. “Messiah” offers numerous character mirrors. Do we see ourselves in them, and what can we learn from them?
It was a gray day with intermittent light and heavy showers. We needed the rain and I found myself humming, perhaps about the rain, perhaps about the call.
There shall be showers of blessings
This is the promise of Love.
There shall be seasons refreshing
Sent from the Savior above.
Showers of blessings.
Showers of blessings we need.
Mercy drops round us are falling,
But for the showers we plead.
I was again waiting for a call. My now eleven-year old great niece was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), a rare and devastating brain tumor, almost three months ago. She tolerated the six-weeks of focused radiation treatments very well and with occasional medication has been fairly symptom free. The doctors say she is doing better than any child they have ever treated with DIPG. We are thankful!
Last Friday she had an MRI to see if the radiation had had any effects on the tumor and as a prerequisite to possible participation in an immunotherapy clinical trial at Texas Children’s Hospital in Houston. From the initial diagnosis we have been keenly aware of the devastating statistical prognosis for DIPG patients. While there has been no denying the science of the disease, we have steadfastly prayed along with possibly thousands of others in our social media and home communities for God’s grace and healing for our girl. Family, friends, community members, total strangers have reached out with love, concern, compassion, and generosity. From the Make-A-Wish Foundation who sponsored a trip so that our girl could get her wish to “swim with the dolphins” to the local community sponsoring an event to raise funds for medical expenses and contributions to DIPG research there has been an outpouring of support that has confirmed our belief in God’s work of grace and goodness through good people. We’ve prayed for a miracle of healing while we’ve experienced the miracle of God’s love and grace everyday since the diagnosis.
The call came from my sister. “Are you ready for this?” she asked.
“Yes, what does it show?”
With a trembling voice she replied, “They can’t see it. It is not there!”
“What! It’s gone! We prayed for a miracle. Praise the Lord!” She was waiting to hear more from my niece so we quickly hung up amid tears of joy.
These last months as I have prayed for healing, grace, wisdom, comfort, and strength for our girl and her family, I have been continually reminded of and prayed John 11:4, a verse I claimed for myself during some difficult days many years ago.
This illness does not lead to death. It is for the glory of God so that the Son of God may be glorified through it.
Yes, to God be the glory! While trying to soak in the reality of our answered prayer and this miracle, I found myself somewhat incredulous. Before the diagnosis I had prayed for the best even as I prepared for the worst, which is exactly what we got. Perhaps this time we have repeated that scenario, but with a different, positive result. Now that our prayer for the tumor to be gone is the reality, why does it seem incredible? Is it some flaw in our faith? Do we lack the capacity to fully believe in God’s power and grace? Are we so steeped in the modern science of medicine that we dismiss the Great Physician? Is incredulity inherent in miracles? I am reminded of the words of the tearful father with the epileptic son in Mark 9:24. Lord, I believe; Help my unbelief!
I have read the MRI report stating, “There are no focal areas of abnormal signal, restricted diffusion, or abnormal enhancement within the brain. No mass, hemorrhage or acute infarct is present.” I have seen the before and after MRI images confirming no presence of a tumor. The doctors in Austin, Houston, and Boston have described the report findings as “rare, very rare.” One stated she has never seen this type of results following radiation treatment for DIPG. Doctors have conferred and are confident they did not misdiagnose. The consensus is that the original diagnosis of DIPG was correct, and there is no disputing that the once large, entangled, inoperable tumor is now gone. Lord, I do believe; help my unbelief.
This is not the end of our girl’s medical treatment. As scientists, the doctors are encouraging continued immunotherapy treatments in clinical trials to combat any possible remaining cancer cells. Only time and periodic MRI’s will tell if the tumor returns. Regardless of what the future may hold, in the here and now, we, and thousands of others, are celebrating and giving God the glory for this miracle of grace and healing.
As the showers continued outside, my heart was flooding with song:
There shall be showers of blessings
This is the promise of Love.
There shall be seasons refreshing
Sent from the Savior above.
Thank you, God, for your showers of blessings—your miracle of healing, the miraculous medical interventions and technologies that you have allowed man to develop, your grace that sustains our faith, your faithfulness even as our faith falters with doubts, the love and support of friends, family, and total strangers—your kingdom here and now on earth. Thank you for the faith of a child who told her parents as they were driving home from the doctor visit: “You all just didn’t have enough faith. I knew it would be gone.”
We continue with prayers of thanksgiving and for sustained healing and good health for our girl.
I sat in the Tyler ISD School Board meeting last night anticipating a vote and a decision that I would support–whatever the outcome–out of respect for the leadership and authority of the school board. I came away incredulous! The motion to change the name of Robert E. Lee High School and begin the new name selection process was followed by stony silence. The board president reminded the members that seconding a motion did not infer or require an affirmative vote. More silence from the dais and the crowd of approximately 100 citizens. The motion was allowed to die for lack of a second. What was going on? In the July board meeting, just two weeks previous, board members had expressed frustration with continued focus on the name change issue and rejected the ideas of more community input meetings or a subcommittee for further study. Instead, they urged an up or down vote on whether to change the name as a means to bring closure one way or another to the entire issue. I was not the only one bewildered after the board’s refusal to allow a vote in this special meeting called for that purpose. Though not the movie setting, “dazed and confused” would be an apt descriptor for many faces in the crowd.
Approximately a year ago after the incident surrounding the controversy of a Robert E. Lee statue in Charlottesville, Virginia, a grassroots effort focused on changing the name of the south Tyler Robert E. Lee High School sprouted and grew. Equally as quickly a counter group took root, and Tyler, once again was a divided community. More accurately the racial tensions that have long remained lumps under Tyler’s beautiful public carpet of roses and azaleas were exposed. The carpet was ripped up and the dust flew!
In September 2017 board members initially signaled support for a name change with one member asking, “Is it fair to make African-American students attend a school named for the leading figure of the Confederacy?” Another stated in reference to the name change, “This is not changing history, this is making a positive impact today,” and urged the board to “do the right thing. . . It’s time for a change.” So what happened? What changed in eleven months?
Unfortunately as the year progressed, the public and, I can only assume, the private discourse was not always civil and respectful. Dueling Facebook groups logged on and petitions swirled. Honestly, when I saw some of the posts, my heart broke and I thought, Oh, no, no! Let’s not go there! Attendance at school board meetings skyrocketed. Items regarding the name change issue were on the official board agenda four times during the past year. Approximately 150 to 200 citizens made public comments at these and other board meetings with the numbers for and against the change fairly equal. Needless to say, it was at times ugly.
Yes, the nature and tenor of the discourse changed. It became louder, more fractured, less civil, and at times plummeted to accusation and name-calling. Regrettably, some folks on both sides allowed their emotions and passions to cloud and disrupt their reason and respect. Interestingly, as the board members spoke moments prior to the “vote, but no vote,” their primary focus, with a couple of exceptions, was on the community. They expressed, sometimes loudly, their disapproval and disappointment in the process and chastised folks for the divisiveness, the disrespect, the lack of courtesy and civility. They argued that the name change issue was a political and social issue and not germane to the function of the board—to focus on successful student outcomes. They took offense to this issue “being forced upon the board” and “the predicament that we have been placed in.” They argued that a name change would be a betrayal of the taxpayers who approved a bond to construct and renovate John Tyler High School and Robert E. Lee High School and changing the name was equated to a “bait and switch” scheme. (Note: The actual proposition on the May 6, 2017 Official Ballot-Bond Election did not include the names of the two high schools.)
What I found even more interesting and unsettling was that again, with only a few exceptions, the board members did not talk about what they believed would be the impact of a name change or no name change on current or future students. Although they espoused their focus as a board was to work toward positive, successful student outcomes, I did not hear, “I believe changing the name would have a negative/positive impact on student achievement because. . .” I also did not hear, “I believe changing the name would have a positive/negative impact on our community because. . .” Logically, every issue before the board should be viewed through the lens of how will this impact student outcomes/achievement. How will it impact our community as a whole and thus our community of students? With few exceptions specific answers to these vital questions were not a large part of the board members’ discussion at this or any previous meeting to my knowledge.
Maybe, to the detriment of all, some in the community allowed their emotions to guide their discourse, and in the end, perhaps the majority of the board members did as well. As school board members and leaders of the community, they failed to lead. They failed to remain objectively focused on the issue—a school name change—and how that change would or would not impact student outcomes, now and in the future. Granted, it is a difficult, highly charged, emotional issue with prospects for a general consensus being very bleak even in the process of extended civil discourse. Surely, the board members knew this. Also, I would hope they knew when they ran for office that there would be times of difficult decisions, contentious personalities, unhappy people, and they could possibly, most probably, at some point be the target of someone’s ill-temper.
The community expected a vote. The board members had lead folks to believe that they wanted a vote, a decision. Why didn’t it happen? Why did our leaders fail to lead? I have my ideas, which are purely speculative and probably, for now, are best kept to myself. As I left the board meeting amidst the dazed and confused, I heard various descriptors–cowards, shameful, no moral courage, gutless. Well, I don’t know about all that. I do believe, in this instance they failed to rise above the fray, maintain their focus on the best possible student outcomes, measure the issue through that lens, and vote on a difficult issue. On this occasion, they failed to lead. One board member stated prior to the “vote, no vote” that no matter what the board had done up until this point this is how they’re going to be remembered. Unfortunately, I believe he is correct!
I had projects waiting to be completed, letters to write, and activities to plan. I was eager to get started or get back at them. Today, I don’t seem to care. They are trivial and seemingly unimportant. What has changed?
I got the call a week ago on Thursday evening. I had waited for it all day. After nearly two weeks of symptoms—headache, vomiting, and general fatigue and feel bad—numerous doctor’s appointments, and countless medical tests, we were waiting to hear the results from the MRI. The ENT doctor had discovered the nystagmus, uncontrolled eye movements, Tuesday afternoon and immediately set up an appointment with the pediatric neurologist for Wednesday afternoon. The neurologist saying, “Let’s not wait until tomorrow,” scheduled the MRI for 9:30 that night. Prayer mode kicked into higher gear!
After learning of the nystagmus, I did some googling—not necessarily a good thing to do. While praying for the best outcome, an old “what if,” worst-case scenario habit, kept haunting me. She, my ten-year-od great niece, was exhibiting five of the six symptoms of a brain tumor! The call came. “It’s a brain tumor.” Okay, I was somewhat prepared for that. What came next had never entered my mind. “It is inoperable, on the brain stem and too large and entangled with other tissue. They will do some radiation to hopefully shrink and stop the tumors growth.” The projected prognosis is the worst imaginable. The emotions came quick and hard even while I said my goodbyes, “We are praying. Keep in touch. I love you,” and clicked off the phone.
I fell into the sofa crying. I wailed, “Oh, God, no!” I cried more. My wife held me. We held each other. We cried. My chest hurts, I can’t get my breath. Am I having a heart attack? The sobs and pain lessened momentarily only to come roaring back again and again. It felt like a vise was tightening around my chest. Just breathe. Just breathe! Is this what a broken heart feels like? My heart breaks for my sweet little niece and her family—her mama, daddy, big brother and big sister. My heart breaks for her grandmother, my sister. I am heartbroken.
In the week since the call, I am not crying as much, but there are still times that I feel myself “going down” and tears welling up. I have asked “Why, God!” No answers other than we live in a fallen imperfect world in flesh and bone imperfect bodies. Don’t know if that is God’s answer or mine. I haven’t been able to focus on much other than staying in touch with the family, keeping others posted on what is happening, joining the wonderful “tribe” of folks who have come together to support my niece and her family, and reaching out to friends asking their prayers. I have learned a lot—more than I would want to know–about Diffuse Intrinsic Pontine Glioma (DIPG), a rare and the most devastating pediatric brain tumor. I have researched numerous clinical trials. We are hopeful and thankful that she has seen the doctors at MD Anderson, St. Jude Children’s Research Hospital has called, and there seem to be some options for clinical trial participation. Outside physical labor has provided some respite and distraction. I have weeded and spread 60+ bags of mulch in various beds this week. Good sleep seems to only come with total exhaustion. I could retreat into total aloneness. I know that would not be a healthy choice for me so I try to balance alone time and being with friends that I care about and I know care for me. I continue to pray even as I have no words. I am reminded of James Montgomery’s hymn “Prayer is the Soul’s Sincere Desire.”
Prayer is the soul’s sincere desire
Uttered or unexpressed
The motion of a hidden fire
That trembles in the breast
Prayer is the burden of a sigh,
The falling of a tear;
The upward glancing of an eye
When none but God is near.
Yet, every time I turn to other interest that I have been passionate about—social justice issues, civic organizations, ministry and advocacy work—they just don’t seem to be important or matter anymore. My head tells me they are important and maybe the passion will return in time, or maybe not.
In my heart right now, nothing else matters!